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Life sciences · Interventional Study
ClinicalTrials.gov · September 18, 2026
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Interventional Study.
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Registry record from ClinicalTrials.gov (NCT05139290). This is a study registration, not published results. Lead sponsor: Emory University. Recruitment status: WITHDRAWN. Phase: NA. Study type: INTERVENTIONAL. Conditions: Dementia, Alzheimer Disease, Caregiver Burden. Interventions: BEHAVIORAL: Prototype Intervention. Primary outcome measures: Participant retention , eight weeks; Usability of Intervention , Upon completion of the intervention (estimated to be 8 weeks); Percentage of recruitment goal achieved , Up to 6 months after the start of recruitment; Change in Quality of Life-Alzheimer's Disease (QoL-AD) Scale Score , 0-month, 1 month, 3 months; Change in Decision Self-Efficacy Scale Score , 0-month, 1 month, 3 months. Brief summary: The purpose of this study is to design and test a decision-making program that is tailored to support adult daughters making healthcare decisions for their parents who are living with memory loss to improve the quality of life of African American families. There are two phases of this research study. The first phase will collect information by surveys and/or interviews. The surveys and interviews will ask questions about demographics (e.g., age, race/ethnicity), culture, health, family dynamics, caregiving, and healthcare experiences. The surveys will be completed by all eligible adult daughters and parents with memory loss in pairs. The interviews will be completed by a smaller number of pairs and by all former adult daughter caregivers. The general scope of topics is caregiving experiences, cultural identity, healthcare decisions for persons living with Alzheimer's disease, and related dementias, health, and well-being. The research team will identify and examine key factors that will lead to designing and testing the feasibility of a culturally tailored prototype intervention for African American dementia dyads/families of persons living with mild to moderate Alzheimer's disease and related dementias.